We NEED your help. Please donate to the WPI by visiting their website: Whittemore-Peterson Institute
˙·٠•●♥ ᙬٱٱᙩ ♥●•٠·˙
Showing posts with label Videos. Show all posts
Showing posts with label Videos. Show all posts
Tuesday, September 14, 2010
ME/CFS, Autism and More
The Whittemore-Peterson Institute: Answers for ME/CFS, Autism and More
We NEED your help. Please donate to the WPI by visiting their website: Whittemore-Peterson Institute
We NEED your help. Please donate to the WPI by visiting their website: Whittemore-Peterson Institute
Sunday, August 22, 2010
Not a Dry Eye: Annette and Andrea at the WPI CMM Inauguration
Where it all began, how it gained momentum and where we are All headed, thanks to Annette, Harvey Whittemore, and Andrea Whittemore-Goad, Dr. Peterson, Dr. Mikovit's team, and the rest of those who worked so very hard to make the Whittemore Peterson Institutes's Center for Molecular Medicine a reality, and hope for all of us. Andrea, it was so delightful to see you up there!
For additional information from WPI, the Press and Advocates:
WPI Press Release: WPI Celebrates new Building Dedication
InvestinME.org: Opening of the WPI Neuro-Immune Disease Center
The Rainmakers: ME/CFS Patient Advocate
Hope Soars for Research Center
X Rx was there :+)
When I was 95% bed and couch bound, and at my sickest during the years 2001-2006, the one thing I learned the hard way was that although I couldn't promise the next day would be better, I could without a doubt, promise myself it would be different. "Different" was something I could count on, and a promise I could hang onto realistically. Now I can say to myself:
Tomorrow will be a Better day.
The WPI has given me that. What an extraordinary, singular experience I never thought I would have. God Bless you all.
For additional information from WPI, the Press and Advocates:
WPI Press Release: WPI Celebrates new Building Dedication
InvestinME.org: Opening of the WPI Neuro-Immune Disease Center
The Rainmakers: ME/CFS Patient Advocate
Hope Soars for Research Center
X Rx was there :+)
Andrea at the WPI/CMM sign describing the mission:
Ours Are The Wings Of Hope.
A Testament to Purpose, Patience, and Overcoming the Odds.
Soaring over Barriers to Bring Dignity and Relief to Patients and Families Around the Globe.
˙·٠•●♥ ᙬٱٱᙩ ♥●•٠·˙
When I was 95% bed and couch bound, and at my sickest during the years 2001-2006, the one thing I learned the hard way was that although I couldn't promise the next day would be better, I could without a doubt, promise myself it would be different. "Different" was something I could count on, and a promise I could hang onto realistically. Now I can say to myself:
Tomorrow will be a Better day.
The WPI has given me that. What an extraordinary, singular experience I never thought I would have. God Bless you all.
Tuesday, August 17, 2010
Renewed Hope: WPI's Brainchild is Born
The Whittemore Peterson Institute for Neuro-Immune Disease at the School of Medicine on the UNR (University of Nevada, Reno) campus, held it's grand opening Monday, August 16, 2010. It's like I have been lifted up above the clouds where the air is clean and pure. It's a new day. A special HUG to Andrea Whittemore, who represented all ME/CFS patients yesterday as she read from a letter she had written purposely for the grand opening. Thank you from the depths of my heart Andrea. You are an angels' angel.
The Whittemore Peterson Institute Celebrates Formal Dedication to New Building (Press Release).
Take a walkthrough here:
If the grand opening wasn't enough to bring the sunlight in (and it was), Dr. Judy Mikovits revealed to the Reno Gazette Journal yesterday (Monday, August 16), that Dr. Alter's (FDA/NIH collaboration) XMRV ME/CFS paper will be released in September, and it confirms their findings that there is a high association of XMRV in ME/CFS patients.
"“There has been an issue over whether anybody could replicate our study, and it will not only confirm our findings but extend our findings, which is really exciting for us,” she said"
Findings by Reno scientists confirmed by U.S. government
Dr. Judy Mikovit's and Dr. Vince Lombardi (shown below) were authors of the research paper published in Science Magazine on October 9, 2009, that revealed to the public for the first time, that XMRV was present in the blood of 67% of the tested ME/CFS patients.
Knowing there are now 3 HIV drugs that suppress XMRV in vitro, Dr. Mikovit's said:
“We totally expect at least one clinical treatment trial before the end of the year,” she said. “That is our goal and that’s what this new facility is for.”
Dr. Sanford Barsky, who will be involved with the breast cancer reseach at the center, is shown here in the new lab. He is hoping to discover the causal factors of breast cancer latency.
An extended RGJ article on the center is here:
New UNR center to aid in fight against numerous afflictions
Validation is a tender eureka moment for those of us who have suffered for anywhere from 5 to 25+ years with this illness that has robbed us of everything in life, including the support from the medical community that has believed the CDC dogma that ME/CFS is a psychological condition. We have been labeled malingering and lazy, crazy and that we have "Abnormal illness beliefs". All the while there are over 4000 pieces of literature published since the 1980's that has proven the physiological basis of this illness including immune, neurological and cardiac system abnormalities.
All of this comes too late for those who have passed away since October 9, 2009, including the two ME/CFS patients we lost just a few days ago. So for me, this day was for them and their surviving families. I am praying that those suffering can hold on a few more months until the WPI Neuro-Immune Disease Institute opens its' clinic doors later this Fall. Until then, my days are a bit brighter; my hope is renewed.
Thank you Annette Whittemore and family for making the dream come true.
The Whittemore Peterson Institute Celebrates Formal Dedication to New Building (Press Release).
Take a walkthrough here:
If the grand opening wasn't enough to bring the sunlight in (and it was), Dr. Judy Mikovits revealed to the Reno Gazette Journal yesterday (Monday, August 16), that Dr. Alter's (FDA/NIH collaboration) XMRV ME/CFS paper will be released in September, and it confirms their findings that there is a high association of XMRV in ME/CFS patients.
"“There has been an issue over whether anybody could replicate our study, and it will not only confirm our findings but extend our findings, which is really exciting for us,” she said"
Findings by Reno scientists confirmed by U.S. government
Dr. Judy Mikovit's and Dr. Vince Lombardi (shown below) were authors of the research paper published in Science Magazine on October 9, 2009, that revealed to the public for the first time, that XMRV was present in the blood of 67% of the tested ME/CFS patients.
Knowing there are now 3 HIV drugs that suppress XMRV in vitro, Dr. Mikovit's said:
“We totally expect at least one clinical treatment trial before the end of the year,” she said. “That is our goal and that’s what this new facility is for.”
Dr. Sanford Barsky, who will be involved with the breast cancer reseach at the center, is shown here in the new lab. He is hoping to discover the causal factors of breast cancer latency.
An extended RGJ article on the center is here:
New UNR center to aid in fight against numerous afflictions
Validation is a tender eureka moment for those of us who have suffered for anywhere from 5 to 25+ years with this illness that has robbed us of everything in life, including the support from the medical community that has believed the CDC dogma that ME/CFS is a psychological condition. We have been labeled malingering and lazy, crazy and that we have "Abnormal illness beliefs". All the while there are over 4000 pieces of literature published since the 1980's that has proven the physiological basis of this illness including immune, neurological and cardiac system abnormalities.
All of this comes too late for those who have passed away since October 9, 2009, including the two ME/CFS patients we lost just a few days ago. So for me, this day was for them and their surviving families. I am praying that those suffering can hold on a few more months until the WPI Neuro-Immune Disease Institute opens its' clinic doors later this Fall. Until then, my days are a bit brighter; my hope is renewed.
Thank you Annette Whittemore and family for making the dream come true.
Thursday, August 12, 2010
To those who left us, and those who remain
There are friends that I have never met on Facebook, but their story reflects my own. I didn't know those who left us due to ME/CFS complications this week, although I do know their names now. I only know that they suffered and persevered, despite unfathomable odds. I do not know those who loved them, that still remain. Husbands, wives, sisters, mothers, and children. Some of them also suffer from ME/CFS. I don't know them either, but I am reaching out to them just the same.
In dedication to:
In dedication to:
Aylwin (Jennifer) Catchpole
I have been visiting Aylwin's facebook wall the last few days. I have never experienced anything like the outpouring of messages on her wall. Friends saying goodbye to her; more expressing the profound spiritual impact she had on their lives. Her friends are from all over the world; now gathered together with her, in a singular blessed and divine space. It is remarkable.
Jennifer Catchpole's Wall
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Kyle also passed away this week. I did not know Kyle. I cannot imagine the pain his mother is going through, and the hell he went through. I am heartsick by what I read that his mother wrote on Facebook.
"I have Hashimoto Fibro/CFS (Kyles mother), we know the HELL he lived and on medicaid forget any good docs. That's what killed him, a doc refusal on Monday, he died that evening:("
Visiting Kyle's mother's wall is another example of how Love creates a holy place. It is Such an outpouring of loving support and of strength, to try and help her get through this time. Her cries of love for her son, and how he died; and moreover how he lived, is an eternal testament to the devout human spirit, and to the immeasurable depths of Christ's Love.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
I did not know either of you, and yet the world feels darker without you.
To those who remain: May God Bless and Keep you and yours. May He calm your storms.
Rest in Peace
Tuesday, August 3, 2010
Three HIV Drugs With Possible Efficacy Against XMRV
From CFS Central: A good tutorial on the possible HIV Drugs that have been found to move XMRV in vitro.
HIV Drugs With Possible Efficacy Against XMRV
Dr. Ila Singh in collaboration with CSU (My Alma Mater) are focusing on what XMRV does in animal models.
HIV Drugs With Possible Efficacy Against XMRV
Dr. Ila Singh in collaboration with CSU (My Alma Mater) are focusing on what XMRV does in animal models.
Video Courtesy of KSL.com
Thursday, July 1, 2010
Got Clout?
Seriously?, has Anyone bothered to tell the CDC authors of the XMRV CFS paper that was published today, that the more they yell "Shotgun!" to get their paper published before the FDA/NIH's, the more they are digging their own grave? The NCI, CC, and now the FDA and the NIH have found positive evidence of XMRV in CFS patients, but they are all wrong and you boys (excuse me, and girls) are right? You've been staring at your own reflections for wayyyyy too long. You really need to take a step back and look at what's going on with your tail ends:
Whoa dudes, what's happened to your um... clout!
But hey, thanks for the laugh I had reading your um... *cough*paper*cough* today. And for those poor co-authors who may have thought that having their names on the same paper as Bill Reeves might be a good way to gain kudos from the CDC echelons of power? Maybe steer their careers upward? Dudes. I mean.. Damn.
And no,no,no... the commercial doesn't mean you should take out more insurance on your incredibly crippled, antiquated, not to mention ineffective CFS policies and guidelines, of which you, and your colleagues at the CDC, are the only ones left in the world that take them seriously. Come to think of it, I'd bet my last dollar Most of your colleagues at the CDC do Not take them seriously. And now I think I get why no one has bothered to tell you of your folly. Look around, and don't be surprised that no one is behind you. Run along now, and ... oops, your rattle fell off. Got duct tape?
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
NOTE: A big thank you to Amy Drockster Marcus at WSJ Health Blog for continuing to cover this story (See News Picks on the right side of this blog site). Please stay with it Amy, we need you.
Whoa dudes, what's happened to your um... clout!
But hey, thanks for the laugh I had reading your um... *cough*paper*cough* today. And for those poor co-authors who may have thought that having their names on the same paper as Bill Reeves might be a good way to gain kudos from the CDC echelons of power? Maybe steer their careers upward? Dudes. I mean.. Damn.
And no,no,no... the commercial doesn't mean you should take out more insurance on your incredibly crippled, antiquated, not to mention ineffective CFS policies and guidelines, of which you, and your colleagues at the CDC, are the only ones left in the world that take them seriously. Come to think of it, I'd bet my last dollar Most of your colleagues at the CDC do Not take them seriously. And now I think I get why no one has bothered to tell you of your folly. Look around, and don't be surprised that no one is behind you. Run along now, and ... oops, your rattle fell off. Got duct tape?
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
NOTE: A big thank you to Amy Drockster Marcus at WSJ Health Blog for continuing to cover this story (See News Picks on the right side of this blog site). Please stay with it Amy, we need you.
Saturday, May 15, 2010
Friday, April 9, 2010
A Welcome Ban on ME/CFS Blood Donations: by Parvofighter
If you want one place to go, to illuminate news surrounding XMRV and CFS/ME, then Parvofighter has it:
And here is the video he references, although I am disappointed Dr. Judy and team and WPI was not mentioned in the video. I guess we should be used to that by now. 
Please join the cause!
Please join the cause!
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Tuesday, February 23, 2010
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