"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Thursday, August 12, 2010

To those who left us, and those who remain

There are friends that I have never met on Facebook, but their story reflects my own. I didn't know those who left us due to ME/CFS complications this week, although I do know their names now. I only know that they suffered and persevered, despite unfathomable odds. I do not know those who loved them, that still remain.  Husbands, wives, sisters, mothers, and children. Some of them also suffer from ME/CFS. I don't know them either, but I am reaching out to them just the same. 

In dedication to: 

Aylwin (Jennifer) Catchpole

I have been visiting Aylwin's facebook wall the last few days. I have never experienced anything like the outpouring of messages on her wall. Friends saying goodbye to her; more expressing the profound spiritual impact she had on their lives. Her friends are from all over the world; now gathered together with her, in a singular blessed and divine space. It is remarkable.

Jennifer Catchpole's Wall 

˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙

Kyle also passed away this week. I did not know Kyle. I cannot imagine the pain his mother is going through, and the hell he went through. I am heartsick by what I read that his mother wrote on Facebook.

"I have Hashimoto Fibro/CFS (Kyles mother), we know the HELL he lived and on medicaid forget any good docs. That's what killed him, a doc refusal on Monday, he died that evening:("

Visiting Kyle's mother's wall is another example of how Love creates a holy place. It is Such an outpouring of loving support and of strength, to try and help her get through this time. Her cries of love for her son, and how he died; and moreover how he lived, is an eternal testament to the devout human spirit, and to the immeasurable depths of Christ's Love.

˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙

I did not know either of you, and yet the world feels darker without you.

To those who remain: May God Bless and Keep you and yours. May He calm your storms.

Rest in Peace

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