"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Tuesday, November 24, 2009

Well said

Anonymous sums it it well from here , about the insurance industry not wanting to pay out long term disability insurance to CFS patients, and the ineptness of the CDC:

Anonymous said... "Hillary Johnson has said much the same has you have. Others, including myself, have long believed your arguments were the case for the extreme neglect, actually, deliberate criminal intent by the CDC as a whole and those that ran the CDC/CFS program. ..... Dig some more and see if you can't find documents or people that will tell you if there was some sort of concerted plan to keep the CFS sick from getting insurance disability when the AIDS/HIV people were getting it - but as I have said elsewhere, those AIDS/HIV people "were well behaved and died quickly" while the CFIDS people stayed terribly sick and disabled for years and decades."

If I could...

I would walk to Washington for May 12th, 2010. CFS Awareness day.

Google says I can in 23 days!  Who knew! ~ giggle~

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Want the good news first?

Good news! Since the discovery of XMRV, the world will no longer shun us (PWC's) as outcasts and/or those who are genetically flawed as to where we just cannot handle the normal stresses in everyday life! (hence my blogger name =p)

Nononono... now we can be shunned for all the Right reasons. As in: "OMG, stay away from her, she has XMRV; she's a leper! She has 'cooties'! Run, Forest, RUN!!"