"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

CFS .gov

Lest this never be forgotten, I am posting how the CDC re-defined CFS from the holmes definition (1988), to the Fukuda definition in 1994.

CFS Definitions

Please think about keeping all contact polite and professional. If you send an email you should include links to official scientific papers or newspaper articles if you reference them; or if using snail mail you should include copies.

Kathleen Sebelius
The U.S. Department of Health and Human Services
200 Independence Avenue, S.W
Washington, D.C. 20201
Kathleen.Sebelius@hhs.gov


Office of the Surgeon General
5600 Fishers Lane
Room 18-66
Rockville, MD 20857
Telephone: 301-443-4000
Fax: 301-443-3574


Dr. Wanda K. Jones
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Office of Public Health and Science
U.S. Department of Health and Human Services
Hubert H. Humphrey Building, Room 712E
200 Independence Avenue SW.
Washington, DC 20201
(202) 690-7650 (Voice)
(202) 401-4005 (FAX)
wanda.jones@hhs.gov


You can write your own senators by going through:
http://www.senate.gov/
and you can write your Congressman by going through:
http://www.house.gov/


=============================
Other officials and scientists to contact.


NOTE: Some of the names/addresses came from another persons work so I do not take credit for it. And from where I found it, and when, I cannot recall. My apologies if there are errors below (non existant links etc), and hell, some of these may not be relevant to CFS at all. I promise to clean this up for data integrity, but not today. :+)


These are found on the CDC's website as of today. I used the vanilla address for lack of specifics found there (bld numbers, mailstops etc).


Rima Khabbaz, M.D.
Acting Deputy Director for Infectious Diseases
1600 Clifton Rd.
Atlanta, GA 30329

Also, the Department of Health and Human Services also has a Board of Scientific Counselors who interface with the Coordinating Center for Infectious Diseases (CCID) which is the division the CFSRP is under at the CDC.
Thomas Hearn, PHD
Acting Director, National Center for Emerging and Zoonotic Infectious Diseases
Centers for Disease Control and Prevention
1600 Clifton Rd.
Atlanta, GA 30333


Anne Schuchat, MD (RADM, USPHS)
Assistant Surgeon General, United States Public Health Service (USPHS)
Director, National Center for Immunization and Respiratory Diseases (NCIRD)
Centers for Disease Control and Prevention
1600 Clifton Rd.
Atlanta, GA 30333


Janet Nicholson, Ph.D.
Senior Advisory for Laboratory Science
Coordinating Center for Infectious Diseases
Centers for Disease Control and Prevention
jnicholson@clsi.org
jknl@cdc.gov


Gail A Bolan, M.D.
Chief, STD Control Branch
Department of Health Services
State of California
Richmond, CA
gbolan@dhs.ca.gov
Term: 1/4/2008 – 9/30/2010