"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Thursday, June 17, 2010

Blood center in middle of debate on chronic fatigue "Syndrome"

Yeah, I quoted "Syndrome" because it isn't used in the article subject.  It is such a travesty that the US cannot seem to grasp that fact, that we are NOT chronically fatigued. But why should they? The CDC has been framing this term to be used as much as possible for the last 20+ years.  Patients with cancers, and clinical depression (to just name two) can be chronically fatigued. Their bodies are under assault and it goes without saying of Course they will be. But chronic fatigue is to CFS/ME as a match is the a nuclear bomb strike. The CDC does not call Tuberculosis "Chronic Coughing Syndrome", or even call Parkinson's Disease "Chronic Shaking Syndrome". Now, since the 1990's, the "Syndrome" part of their ridiculing CFS name as been dropped by medical and journalist alike, subsetting us once again into a category where we do not belong, and as such, are denied access to proper medical support, treatment, and disability benefits. This makes the boys in the backroom of the health insurance industry squeal in glee, because with this name, they can deny any long term disability benefits.  But you all have heard me talk on this point et. nauseum, and I digress:

Along with New Zealand, Canada and Australia... now "Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director"... states that:

"The Mississippi Valley Regional Blood Center in Davenport could be among the first in the country to ask its donors with the syndrome (ooo, he said syndrome! typo? =p) to consider a self-imposed ban."

Full article here

"Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director, is a member of a 'federal' task force studying the issue. The task force was organized by AABB, an international association that includes virtually all the blood centers in the United States."


So, we are just 'chronically fatigued' according to the article, and deserving of no disability benefits, or medical treatments that have been working outside our country (Search Ampligen on this site), and yet they don't want us to donate blood.  Since when are people who are chronically fatigued capable of possibly transmitting a retrovirus? O yeah, XMRV.  And so, we should impose a 'self ban' on ourselves until they have the guts to make it official.  Maybe the next Blue Moon you might expect it, but don't count on it. They don't want to start a panic, so they first get a standardized test (already available, but they won't contract with the manufacturers. Search CERUS on this site), then they will have to run all the blood bank products against it (including plasma). That is a huge expense. Instead, they 'might' try and empty as much of the inventories as possible beforehand, to bring the cost down. Bayer did this with HIV, and shipped off a huge amount of their inventories to third world countries.

"2 Paths of Bayer Drug in 80's: Riskier Type Went Overseas"

Hmmmm, anyone have a clue about how we might go about understanding Bayer's current blood products distribution activities?

So, imo, don't expect the US to be willing to make an official statement concerning banning CFS patients from donating blood anytime soon. But I am pleased at least that teh subject has been talked about by Dr. Katz. The more awareness the better.

˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙

No comments:

Post a Comment