This statement Ryan gave speaks about the lack of understanding of those diagnosed with ME/CFS.
"Not understanding or having no desire to learn about CFS is no excuse for widespread ignorance. Be it in the medical field, legal system or just everyday life, efforts need to be made to reform the system with a better understanding of this illness".
Ryan and his family learned recently that he tested positive for XMRV (or PMLV/MLV. The acronym's may change while they sort this all out, but the fact that we are infected by a gammaretrovirus is indisputable. See PMRV joins XMRV):
Local family feels vindicated by breakthrough research
DSS needs to be hung from the rafters for this. Imho, they have shortened his life by possibly tens of years, due to the physical strain they put him under, and the potential remodeling of his heart as a direct result. And that is just one of many ME/CFS neuro-immune related dysfunctions that could have been exasperated beyond the point of no return. But they weren't the ones who provided the momentum for the medical community to neglect, dismiss and demean ME/CFS sufferers, and/or accuse parents of neglect.
Thanks again Bill Reeves et all., at the CDC, for redefining the Holmes CFS diagnostic criteria (1989), to the Fukuda criteria in 1994, that sealed our fate by cementing the dogma that ME/CFS was psychological, when you knew Damn Well it was Clearly proved with lab test evidence it was not. It was (and still is) the CDC's direct actions that has led to thousands of ME/CFS related deaths. Tens of thousands of children are now bedridden, neglected and shunned, and millions have been labeled lazy and worse by the medical community, who are supposed to actually care and treat the sick in this country. Finally, because of their blatantly fraudulent actions (Osler's Web), tens of millions of other men, women and children in the US are now infected with XMRV. But, at least you saved the health insurance industry billions of dollars of denied disability benefits. That's what was important yes?
And btw Bill et all. at the CDC, the NIH (Anthony Fauci and Stephen Straus (deceased 2007) at the NIAID), and their cohorts in the health insurance industry, how does it feel knowing you are directly responsible for your children, and your grand children, possibly being infected with XMRV?
Bringing Ryan Home
P.A.N.D.O.R.A.'s effort to help Ryan
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