"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Wednesday, September 15, 2010

Ryan Baldwin: XMRV+

Ryan Baldwin, an ME/CFS patient, was removed from his home in North Carolina in January, 2009, when an unidentified medical doctor reported to the DSS that he was being medically abused by his parents.  His  parents were charged with “Fictitious Disorder by Proxy”.  Ryan spent ten months in multiple foster homes while his parents, who were denied any contact, spent everything they had and more fighting the system to get him back into their care.  During his foster home stays, the foster parents were told there was nothing medically wrong with Ryan. In addition, he was not provided with his wheelchair, and was forced to climb stairs. He was also subjected to exercise 'therapy'.

This statement Ryan gave speaks about the lack of understanding of those diagnosed with ME/CFS.

"Not understanding or having no desire to learn about CFS is no excuse for widespread ignorance. Be it in the medical field, legal system or just everyday life, efforts need to be made to reform the system with a better understanding of this illness".

Ryan and his family learned recently that he tested positive for XMRV (or PMLV/MLV. The acronym's may change while they sort this all out, but the fact that we are infected by a gammaretrovirus is indisputable. See PMRV joins XMRV):

Local family feels vindicated by breakthrough research

DSS needs to be hung from the rafters for this. Imho, they have shortened his life by possibly tens of years, due to the physical strain they put him under, and the potential remodeling of his heart as a direct result.  And that is just one of many ME/CFS neuro-immune related dysfunctions that could have been exasperated beyond the point of no return.  But they weren't the ones who provided the momentum for the medical community to neglect, dismiss and demean ME/CFS sufferers, and/or accuse parents of neglect.

Thanks again Bill Reeves et all., at the CDC, for redefining the Holmes CFS diagnostic criteria (1989), to the Fukuda criteria in 1994, that sealed our fate by cementing the dogma that ME/CFS was psychological, when you knew Damn Well it was Clearly proved with lab test evidence it was not. It was (and still is) the CDC's direct actions that has led to thousands of ME/CFS related deaths. Tens of thousands of children are now bedridden, neglected and shunned, and millions have been labeled lazy and worse by the medical community, who are supposed to actually care and treat the sick in this country. Finally, because of their blatantly fraudulent actions (Osler's Web), tens of millions of other men, women and children in the US are now infected with XMRV. But, at least you saved the health insurance industry billions of dollars of denied disability benefits. That's what was important yes?

And btw Bill et all. at the CDC, the NIH (Anthony Fauci and Stephen Straus (deceased 2007) at the NIAID), and their cohorts in the health insurance industry, how does it feel knowing you are directly responsible for your children, and your grand children, possibly being infected with XMRV?


Bringing Ryan Home

P.A.N.D.O.R.A.'s effort to help Ryan

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  1. Horrific Katie, just horrific.it sends a shudder down my spine when I hear stories like this. It is frightening just how much they can control lives.

  2. Have the North Carolina authorities furnished Ryan and his parents a copy of his test results? If not, that should be the first order of business for the family's attorney in pursuing this claim.

    Patricia Carter

  3. The Baldwin family is currently looking for a
    law firm or lawyer to aid them in their fight
    against DSS and the medical doctors who blocked
    his care in the local area. Ryan was forced to
    seek medical help from specialists in
    Charlotte NC (2 Hours distant from his home).
    DSS then took him because he did not have a
    LOCAL Primary Care Provider ! They considered
    this to be Neglect by the parents. The Baldwins,
    their family and advocates have evidence of all
    the wrong doings and this case could be worth a
    small fortune to any law firm willing to help
    them forever put a stop to DSS' illegal
    actions and end public corruption in Buncombe
    County, NC !

  4. As a former Buncombe County, NC resident, I can
    attest to the vast amount of public corruption
    in the judicial system there. You know the
    place is corrupt or else the District Attorney's
    office would have already cleaned up this case.
    Did Mrs Baldwin ever appeal this case or was
    she blocked from doing that also, by some
    corrupt pubic officials ?