I had read this on Friday, then forgot where i had read it. I didn't want to lose this... as it's kinda well... suspicious given what the CDC is 'supposed' to do.
At any rate, Dr. Unger stated this at teh CFSAC meeting in May, 2010.
"Dr. Elizabeth Unger asserted that her program at the CDC remained committed to theories on metabolic syndrome and stress response, despite the published link between CFS and XRMV"
orly? Are you sure that's your job?
Here's the report
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Sunday, June 27, 2010
Thursday, June 24, 2010
The BIG One!
An update from Hillary Johnson from her Osler's Web Blog concerning the replication confirmation of CFS/XMRV association news from the NIH and FDA.
WE ARE VALIDATED.
Now to work on the Vindication part!
But for now, I never thought I would see this. Although I kept telling myself that the CDC's higher echelons of power couldn't keep this out of the news for long, behind my eyes there was that teeny glimmer of doubt. I am off to sit on Dr. Reeves porch now, with my little sign saying "WHAT SAY YOU NOW DR. REEVES?"
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
WE ARE VALIDATED.
Now to work on the Vindication part!
But for now, I never thought I would see this. Although I kept telling myself that the CDC's higher echelons of power couldn't keep this out of the news for long, behind my eyes there was that teeny glimmer of doubt. I am off to sit on Dr. Reeves porch now, with my little sign saying "WHAT SAY YOU NOW DR. REEVES?"
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Confirmation from the NIH on the validity of the XMRV CFS Association
It's happened. I cannot tell you all how this changes the world as we have known it for 25+ years.
"According to a press release issued by a Dutch magazine, one of the slides presented at a recent workshop in Zagreb by Harvey Alter, chief of the infectious disease section at the NIH’s clinical center, supports the link between XMRV and CFS reported last year in Science."
Wall Street Journal:
Further Evidence of an XMRV-Chronic Fatigue Syndrome Connection?
Dutch Press Release:
Original Press Release from the Netherlands: FDA and NIH confirm 'XMRV findings'
"Gendringen, NL (MMD Newswire) June 22, 2010 -- The FDA and the NIH have independently confirmed the XMRV findings as published in Science, October last. This confirmation was issued by Dr. Harvey Alter of the NIH during a closed workshop on blood transfusion held on May 26-27 in Zagreb. Two journalists from the Dutch magazine for health professionals, ORTHO, who have been working on XMRV stories for several months, were able to obtain a copy of the Alter lecture. "
WPI: In The News
It's beginning!!
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
"According to a press release issued by a Dutch magazine, one of the slides presented at a recent workshop in Zagreb by Harvey Alter, chief of the infectious disease section at the NIH’s clinical center, supports the link between XMRV and CFS reported last year in Science."
Wall Street Journal:
Further Evidence of an XMRV-Chronic Fatigue Syndrome Connection?
Dutch Press Release:
Original Press Release from the Netherlands: FDA and NIH confirm 'XMRV findings'
"Gendringen, NL (MMD Newswire) June 22, 2010 -- The FDA and the NIH have independently confirmed the XMRV findings as published in Science, October last. This confirmation was issued by Dr. Harvey Alter of the NIH during a closed workshop on blood transfusion held on May 26-27 in Zagreb. Two journalists from the Dutch magazine for health professionals, ORTHO, who have been working on XMRV stories for several months, were able to obtain a copy of the Alter lecture. "
WPI: In The News
It's beginning!!
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Tuesday, June 22, 2010
Quoted from Dr. Dekoff-Jones, MD., from her response to the article in the Chicago Tribune: Hope outrunning science on chronic fatigue syndrome.
"... Dr. Sax, quoted in the article, is trying to frighten people from getting the help they need to get himself off the hook. His AIDS patients have a much better quality of life than CFS patients do. Has he ever treated even one CFS patient? I bet not. What he said is inaccurate fear mongering. He says it's worth it with HIV because without treatment there is a horrible death. With CFS there is a horrible life."
Response to the Chicogao Tribune article on June 7, 2010.
Thank you Dr. Dekoff-Jones!
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
"... Dr. Sax, quoted in the article, is trying to frighten people from getting the help they need to get himself off the hook. His AIDS patients have a much better quality of life than CFS patients do. Has he ever treated even one CFS patient? I bet not. What he said is inaccurate fear mongering. He says it's worth it with HIV because without treatment there is a horrible death. With CFS there is a horrible life."
Response to the Chicogao Tribune article on June 7, 2010.
Thank you Dr. Dekoff-Jones!
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Monday, June 21, 2010
One Giant Leap for CFSkind
One smart move from the AABB:
"The AABB Interorganizational Task Force on Xenotropic Murine Leukemia Virus-Related Virus reviewed the risk of transfusion transmission of XMRV by individuals with chronic fatigue syndrome (CFS). The task force presented its recommendations to the AABB Board of Directors, which approved an interim measure intended to prevent patients with a current or past diagnosis of CFS from donating blood or blood components."
Recommendation on Chronic Fatigue Syndrome and Blood Donation
Now UK, what will you do?
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
"The AABB Interorganizational Task Force on Xenotropic Murine Leukemia Virus-Related Virus reviewed the risk of transfusion transmission of XMRV by individuals with chronic fatigue syndrome (CFS). The task force presented its recommendations to the AABB Board of Directors, which approved an interim measure intended to prevent patients with a current or past diagnosis of CFS from donating blood or blood components."
Recommendation on Chronic Fatigue Syndrome and Blood Donation
Now UK, what will you do?
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
The Controversy Continues...
From Medscape:
"Although several XMRV assays have been developed, "at present, there is no standardized, validated assay for the virus," said Simone Glynn, MD, director of the Blood Resources Program of the National Heart, Lung and Blood Institute (NHLBI) and cochair of an NHLBI scientific research working group formed to evaluate whether XMRV poses a threat to blood safety."
Good article explaining recurring investigations into XMRV's possible ramifications for human beings.
Controversy Continues on Whether XMRV Retrovirus Contributes to Chronic Fatigue Syndrome
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
"Although several XMRV assays have been developed, "at present, there is no standardized, validated assay for the virus," said Simone Glynn, MD, director of the Blood Resources Program of the National Heart, Lung and Blood Institute (NHLBI) and cochair of an NHLBI scientific research working group formed to evaluate whether XMRV poses a threat to blood safety."
Good article explaining recurring investigations into XMRV's possible ramifications for human beings.
Controversy Continues on Whether XMRV Retrovirus Contributes to Chronic Fatigue Syndrome
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Thursday, June 17, 2010
Blood Product Distribution 101
This was published in 1989. I wonder if anything has changed.
Did you know that...
"While U. S. donors are the source of more than 60 percent of the world's plasma, foreign owners dominate the business. Four of the six largest plasma companies in the United States are owned or controlled by foreign corporations based in Japan, West Germany, Austria and Canada."
and that:
"In this international market, it is not uncommon for plasma to change hands several times. Sometimes plasma brokers - middlemen who profit by bringing together those who have plasma with those who need it - are involved. Even in industry circles, brokers are considered a secretive lot. There are no lists of brokers and finding one is no small task. Locating one willing to talk is even harder. Asked to describe his business during a brief telephone conversation, one of them, Eric Jarrett, a Woodland Hills, Calif., broker said: "We sell plasma to whoever wants to buy it."
More here:
http://www.bloodbook.com/part-5.html
Couple this distribution methodology with XMRV blood supply potentials, and we've got a serious problem. Even worse than with HIV, because if I am thinking correctly, blood product brokers didn't exist nearly as much as they do today. It's like the diamond industry in Africa. Illegal brokerage of the diamonds funded civil wars that were responsible for the mass killing of thousands and thousands of innocent people in, and around Sierra Leone. It wasn't until De Beers was under tremendous pressure that they (the diamond industry) put together a policy to eradicate the illegal process as much as possible, but in the case of the blood product brokers in the US, there is no policy, and there may be no way of knowing where the blood product comes from after it is in the hands of these brokers.
Interested yet? We need to be, or our families, and your children are at risk with contracting XMRV.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Did you know that...
"While U. S. donors are the source of more than 60 percent of the world's plasma, foreign owners dominate the business. Four of the six largest plasma companies in the United States are owned or controlled by foreign corporations based in Japan, West Germany, Austria and Canada."
and that:
"In this international market, it is not uncommon for plasma to change hands several times. Sometimes plasma brokers - middlemen who profit by bringing together those who have plasma with those who need it - are involved. Even in industry circles, brokers are considered a secretive lot. There are no lists of brokers and finding one is no small task. Locating one willing to talk is even harder. Asked to describe his business during a brief telephone conversation, one of them, Eric Jarrett, a Woodland Hills, Calif., broker said: "We sell plasma to whoever wants to buy it."
More here:
http://www.bloodbook.com/part-5.html
Couple this distribution methodology with XMRV blood supply potentials, and we've got a serious problem. Even worse than with HIV, because if I am thinking correctly, blood product brokers didn't exist nearly as much as they do today. It's like the diamond industry in Africa. Illegal brokerage of the diamonds funded civil wars that were responsible for the mass killing of thousands and thousands of innocent people in, and around Sierra Leone. It wasn't until De Beers was under tremendous pressure that they (the diamond industry) put together a policy to eradicate the illegal process as much as possible, but in the case of the blood product brokers in the US, there is no policy, and there may be no way of knowing where the blood product comes from after it is in the hands of these brokers.
Interested yet? We need to be, or our families, and your children are at risk with contracting XMRV.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Blood center in middle of debate on chronic fatigue "Syndrome"
Yeah, I quoted "Syndrome" because it isn't used in the article subject. It is such a travesty that the US cannot seem to grasp that fact, that we are NOT chronically fatigued. But why should they? The CDC has been framing this term to be used as much as possible for the last 20+ years. Patients with cancers, and clinical depression (to just name two) can be chronically fatigued. Their bodies are under assault and it goes without saying of Course they will be. But chronic fatigue is to CFS/ME as a match is the a nuclear bomb strike. The CDC does not call Tuberculosis "Chronic Coughing Syndrome", or even call Parkinson's Disease "Chronic Shaking Syndrome". Now, since the 1990's, the "Syndrome" part of their ridiculing CFS name as been dropped by medical and journalist alike, subsetting us once again into a category where we do not belong, and as such, are denied access to proper medical support, treatment, and disability benefits. This makes the boys in the backroom of the health insurance industry squeal in glee, because with this name, they can deny any long term disability benefits. But you all have heard me talk on this point et. nauseum, and I digress:
Along with New Zealand, Canada and Australia... now "Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director"... states that:
"The Mississippi Valley Regional Blood Center in Davenport could be among the first in the country to ask its donors with the syndrome (ooo, he said syndrome! typo? =p) to consider a self-imposed ban."
Full article here
"Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director, is a member of a 'federal' task force studying the issue. The task force was organized by AABB, an international association that includes virtually all the blood centers in the United States."
=====================================
So, we are just 'chronically fatigued' according to the article, and deserving of no disability benefits, or medical treatments that have been working outside our country (Search Ampligen on this site), and yet they don't want us to donate blood. Since when are people who are chronically fatigued capable of possibly transmitting a retrovirus? O yeah, XMRV. And so, we should impose a 'self ban' on ourselves until they have the guts to make it official. Maybe the next Blue Moon you might expect it, but don't count on it. They don't want to start a panic, so they first get a standardized test (already available, but they won't contract with the manufacturers. Search CERUS on this site), then they will have to run all the blood bank products against it (including plasma). That is a huge expense. Instead, they 'might' try and empty as much of the inventories as possible beforehand, to bring the cost down. Bayer did this with HIV, and shipped off a huge amount of their inventories to third world countries.
"2 Paths of Bayer Drug in 80's: Riskier Type Went Overseas"
Hmmmm, anyone have a clue about how we might go about understanding Bayer's current blood products distribution activities?
So, imo, don't expect the US to be willing to make an official statement concerning banning CFS patients from donating blood anytime soon. But I am pleased at least that teh subject has been talked about by Dr. Katz. The more awareness the better.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Along with New Zealand, Canada and Australia... now "Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director"... states that:
"The Mississippi Valley Regional Blood Center in Davenport could be among the first in the country to ask its donors with the syndrome (ooo, he said syndrome! typo? =p) to consider a self-imposed ban."
Full article here
"Dr. Louis Katz, executive vice president of medical affairs at the blood center and the Scott County Health Department’s medical director, is a member of a 'federal' task force studying the issue. The task force was organized by AABB, an international association that includes virtually all the blood centers in the United States."
=====================================
So, we are just 'chronically fatigued' according to the article, and deserving of no disability benefits, or medical treatments that have been working outside our country (Search Ampligen on this site), and yet they don't want us to donate blood. Since when are people who are chronically fatigued capable of possibly transmitting a retrovirus? O yeah, XMRV. And so, we should impose a 'self ban' on ourselves until they have the guts to make it official. Maybe the next Blue Moon you might expect it, but don't count on it. They don't want to start a panic, so they first get a standardized test (already available, but they won't contract with the manufacturers. Search CERUS on this site), then they will have to run all the blood bank products against it (including plasma). That is a huge expense. Instead, they 'might' try and empty as much of the inventories as possible beforehand, to bring the cost down. Bayer did this with HIV, and shipped off a huge amount of their inventories to third world countries.
"2 Paths of Bayer Drug in 80's: Riskier Type Went Overseas"
Hmmmm, anyone have a clue about how we might go about understanding Bayer's current blood products distribution activities?
So, imo, don't expect the US to be willing to make an official statement concerning banning CFS patients from donating blood anytime soon. But I am pleased at least that teh subject has been talked about by Dr. Katz. The more awareness the better.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Saturday, June 5, 2010
"What About ME?" Promotional Trailer
The second promo was released this week. A Very special thanks and **hugs** to my friends Erik Johnson and Mary Sweitzer for being in this video and representing us all; more big **hugs** to Andrea Whittemore, Dr. Peterson, Dr. Judy Mikovits, and Annette Whittemore. ALL of you spoke so many truths about what it means to be ME. Thank you. Thank you.
The UK trailer can be found on the What About ME? website.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
The UK trailer can be found on the What About ME? website.
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Thursday, June 3, 2010
New XMRV Diagnostic Test to Be Available by July.
Gogogo VipDx and WPI
WPI says New XMRV Diagnostic Test to Be Available by July 1; Announces Arrangements for US & European Testing
How appreciative I am for you all. You give me so much hope!
.•*¨`*. ¸.•*¨*.¸¸.•*¨`*• ƸӜƷ
*.* .♥¸.•'`♥ƸӜƷ Thank you!ƸӜƷ
. . * . * . * . .•*¨`*. ¸.•*¨*.¸¸.•*¨`*•
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
WPI says New XMRV Diagnostic Test to Be Available by July 1; Announces Arrangements for US & European Testing
How appreciative I am for you all. You give me so much hope!
.•*¨`*. ¸.•*¨*.¸¸.•*¨`*• ƸӜƷ
*.* .♥¸.•'`♥ƸӜƷ Thank you!ƸӜƷ
. . * . * . * . .•*¨`*. ¸.•*¨*.¸¸.•*¨`*•
˙·٠•●♥ ƹ̵̡ӝ̵̨̄ʒ ♥●•٠·˙
Subscribe to:
Posts (Atom)