"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Thursday, January 14, 2010

Just tell the truth already UK; get out of bed with the insurance industry....

... and leave their seduction behind. We understand the insurance industry is more powerful the the US IRS, and that the big bad scary wizards are frightening you from behind the curtain. We also understand they are no doubt wanting the US and the UK to be on the very same page with respect to CFS/ME. Because if they are not, it makes it more difficult to control how CFS/ME is diagnosed now, and in the future. What was that you say UK?, oh yeah, that the DSM-IV (Psychiatric Bible) is being revised and the insurance industry wants to make sure that CFS/ME would be classified as a somataform disorder (hysteria), even though "WHO classifies it currently as a neurological disease, and by the CDC as a disease of the nervous system?"** Wait what?, the edits are to be published for review this month? And publication for the new DSM-V is due in May, 2013? Gosh, go figure you want to stall. 

How can this happen? Well, it can't if there is any evidence that reveals CFS/ME is a Neuroimmune Disorder. If XMRV is found to have a high association with CFS/ME patients, then the insurance carriers are screwed. But wait. I'm confused.  Why again does the UK specifically state that CFS/ME patients cannot donate blood? Why was I recommended by my first diagnostician in 1998, who is now in the CFS department at the CDC, to also not donate blood? Since when is a somataform disorder an infectious disease?

The insurance industry needs to legalize that any diagnosis made for CFS/ME on this planet comes from the psychiatric industry, because they currently save 10's of billions of dollars every year by not having to pay out long term disability benefits to CFS/ME patients. They will do everything in their power to move this proven Neuroimmune illness into the DSM-V, to maintain the influx of illegal wads of cash. The Psychiatric industry needs it too. How else will they be able to keep their CBT and GET programs up and running?.  The corporations are not blameless either; but that's exactly what they hope to be.  I personally saw one shift to new policies provided by their insurance carriers, that specifically excluded CFS/ME and Fibromyalgia patients in 1996. And I want to know how much Big Pharm gains to net with the medications the psychiatric industry will use to 'maintain' this 'hysterical' disease. Are you kidding me? The Scientology cult scam has nothing on you people.

The insurance industry will attempt to slow any CFS discoveries down to a crawl or even a halt, until they have what they want.  And the UK weasels, and their CDC/NIH cohorts in the US, need to maintain their bed bug relationships with those who are keeping them alive and squirming.  But you can't hope to continue much longer.  Look around you. Are your industry friends still acting towards you in the same way? Are you sure? Those whispers you hear in the hallways? They are not hallucinations.  You will be on the way out soon, and your colleagues and peers know this, and will want to get as far away from you as possible.  So, those of you in the UK that are still under the wizards spell, we get that either you are trapped by them under the bed covers, and/or so tongue-tied by your egos inability to say "Damn, we screwed up", that you continue to spew mis-information concerning CFS/ME and the XMRV findings. But, for crying out loud; either join the WPI in a positive and open engagement to CORRECTLY replicate their research, which was done in concert with the National Cancer Institute and the Cleveland Clinic, or just slink away in shame already. Trust me, we won't follow you. Except for the criminal proceedings.

Here, I will give you an out (as if you haven't already built this back door). See, it's true that people get chronically fatigued. All kinds of people. Chronically ill people with cancer, diabetes, or heart disease, can be chronically fatigued. People that have other genetic and hereditary diagnosed illnesses can be chronically fatigued. People with lifestyles that aren't exactly um.. conducive to long life and happiness, can be chronically fatigued. Psychiatric patients can also be chronically fatigued.  So, just say "Oh well yeah, we get it now. And our program does help some that are chronically fatigued, but they most likely do not have XMRV.  CFS/ME patients do have XMRV. And XAND (XMRV Associated Neuroimmune Disorder) is to XMRV as AIDS is to HIV." See how that works? Although it's doubtful, you may still have your careers (your reputation is still shot though. I mean come on, if you think your reputations will survive this, then now would be a good time for you to commit yourselves voluntarily. I will supply the referral). You can still help those who do suffer from chronic fatigue. No harm, no foul. Well, wait. You did contribute to the neglect, and deaths of thousands CFS/ME patients. You (UK) forcibly removed CFS/ME patients from their homes, and admitted them to mental institutions, where you tortured them until they died 2 weeks after their release.  WHO ARE YOU PEOPLE? HOW DO YOU SLEEP?

Seriously, how the Hell do you sleep?

Please help me help the Whittmore-Peterson Institute continue their XMRV related research.  They want a treatment. They want a cure. Go here to learn how you can help.


  1. Very well said! I've been severely ill with M.E. for 23 long,long years now & I'm sick of the scandalous way the psychiatric profession has continually tightened its immoral stranglehold on my physical illness.

  2. Well done, Katie. I agree with your final assessment...How do these people sleep?