"It is (ME/CFS) like some great constricting snake that denies its victims the final convulsion." Llewellyn King

"A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS." Nancy Klimas: View video here.

"A CFS patient feels every day significantly the same as an AIDS patient feels two months before death." Dr. Mark Loveless, AIDS and CFS researcher, in a statement to congress on CFS Awareness day, May 12th, 1995.

Wednesday, January 6, 2010

We've lost Jack

I met him in the WPI forums in October. Here is his post that Christine Douglas received permission from Jack to use. I hope it's ok for me to share:

Posted by Jack, October 2009.

At this point; my main concern is Hope for all of the much younger. I was fortunate. I didn't contract this until age 50-(15)-years ago. At least I had a very good life until then. I truly lived "La Dolce Vita" (the sweet life). So please understand that my "rage" & skepticism isn't about "me"; but for those who do have the time if treatment becomes available. Years ago; when diagnosed with "Chronic Epstein-Barr Virus"; I was warned that in my future ,I might develop Cancer. I was told that people with unusually high titers of "Epstein -Barr", carried this potential Cancer risk,--Lymphoma, etc.- So even then ; it was known that their was a viral "link", but was never pursued, because @ that time it was referred to as the "YUPPIE FLU" for those of you who might not be aware of our "hypochondriac Stigma", which still exists to date, unfortunately, but is "slowly" becoming acknowledged as REAL. I was diagnosed with Prostate Cancer 4-1/2 years ago & refused ALL treatment. My urologist thought that I was out of my mind. After all; "they" could CUT, BURN or POISON it. I was told by him that the most time I would have on this Lovely planet was 4 years, without treatment. Well folks; I'm here 6 months longer than my "Expiration Date". My reason for refusing treatment is that my immune system is & was shot & that any of the options presented to me by my very concerned Uroligist; would kill me due to "trauma" from any, or all suggested alternatives. We are too ill to endure conventional means.

After all; death isn't all that bad. At least one dies "from" Prostate Cancer.--ME/CFS, you die "with" it ! --Well, I am a living testimonial that there IS a "Viral link" with ME/CFS. Now; the major question is which virus is the "ONE", or is it a synergistic effect of many, which wreak havoc in the immune system & allow these mutations to occur ? Every new day is a "Bonus" for me & I PRAY for all of us & ask that this "cure" will be available to the young in the very near future. Death for me would be a reprieve from this “Zombie” like existence.


Jack De Luca, our WPI friend and advocate, committed suicide yesterday.  God bless you and your family Jack. Sleep In Heavenly Peace.

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